Volume 27 Number 3
  • ISSN: 1385-1535
  • E-ISSN: 1875-7324



Participatory action research, (extreme) citizen science, living labs or other forms of research with patients or citizen participation continues to grow in popularity. While these research approaches embrace inclusiveness, social justice, and co-ownership, they are not necessarily “ethical”. Ethical issues regularly arise in everyday practice, surrounding partnership, collaboration and power. My PhD made me aware that researchers who conduct participatory research should be mindful of the daily ethical considerations and attention to do the “right” thing. Reflection on dilemmas (together with co-researchers) helps raise awareness and provides direction for appropriate actions.


Article metrics loading...

Loading full text...

Full text loading...


  1. Groot, B.C. (2021) Participatory Health Research: reflections on ethics, roles, and responsibilities. Insights from a reflective journey. Dissertation. VU University, the Netherlands. https://research.vu.nl/ws/portalfiles/portal/123135037/B+C++Groot-Sluijsmans+-+thesis.pdf.
    [Google Scholar]
  2. Groot, B.C. & Abma, T.A. (2020). Participatory Health Research With Mothers Living in Poverty in the Netherlands: Pathways and Challenges to Strengthen Empowerment [59 paragraphs]. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 21(1), Art. 8. http://dx.doi.org/10.17169/fqs-21.1.3302.
    [Google Scholar]
  3. Groot, B.C., Haveman, A. & Abma, T. (2020) Relational, ethically sound co-production in mental health care research: Epistemic injustice and the need for an ethics of care. Critical Public Health. DOI: 10.1080/09581596.2020.1770694.
    [Google Scholar]
  4. Groot, B.C.; Schrijver, J. & Abma, T.A. (2021), Are you afraid of press and social media?, Educational Action Research, 1-19.
    [Google Scholar]
  5. Groot, B.C., Vink, M., Haveman, A., Huberts, M., Schout, G., & Abma, T. A. (2019). Ethics of care in participatory health research: Mutual responsibility in collaboration with co-researchers. Educational Action Research, 27(2), 286-302.
    [Google Scholar]
This is a required field
Please enter a valid email address
Approval was a Success
Invalid data
An Error Occurred
Approval was partially successful, following selected items could not be processed due to error